Member
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Join Date: Feb 2015
Location: NJ
Posts: 153
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Member
Join Date: Feb 2015
Location: NJ
Posts: 153
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John,
My route seems similar 11 years after dx in which I have been reasonably stable. I have been hit by the extra saliva over the past 3 months and then it levels off. Also, in the mornings my legs tremor/shake rapidly and my toe dystonia is more uncomfortable as well. I had two botox sessions 18 months ago for my legs/feet/toes which helped, but I decided not to put that poison in my body anymore. Who knows how safe that stuff will turn out to be in time. Hang in folks...
Best,
Eric
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