Thanks Annie ! I will definitely pursue this. I have managed to get a doctor’s appointment this morning. Unknown doctor but still, I hope he can help.

In the last 3 years, I have been tested for just abput everything known to man. I have seen countless doctors and specialists, including a neurologist, cardiologist, endocrinologist, internist, ENT specialist, ophtalmologist and probably others I forget. I don’t have a pulmologist but as I said, I was recently tested for COPD. I have an appointment for a sleep apnea test in 2019 to then be referred to a sleep specialist, since I have unrefreshing sleep. I do not appear to have sleep apnea.

I have low blood pressure, chronic sinusitis, chronic asthma, chronotropic incompetence, neurally mediated hypotension, some breathing problems, ME, fibromyalgia and surely some I forget. I did a 2 day CPET test and breathing/cardiac problems showed up. I am considered clinically severe for ME but I am not bedbound, « just » mostly housebound.

I’ve also been writing a journal of my symptoms for 3 years.

I’ll let you know what the doc says after my appointment this morning.

Have a great day !