Thread: Atypical MG ?
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Old 03-15-2018, 10:04 PM
Dechi Dechi is offline
Junior Member
 
Join Date: Mar 2018
Posts: 10
5 yr Member
Dechi Dechi is offline
Junior Member
 
Join Date: Mar 2018
Posts: 10
5 yr Member
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I’ve had the muscular symptoms aggravated in the last month. Feeling that my head was too heavy for my neck is a new symptom that I had never felt.

But having muscular weakness is not a new symptom. It was my first symptom in 2013 and it just got a little worse every year, and again in the last month. Which is why they think it’s related to getting the flu.

I asked for the acetylcholine antibody test as you suggested, and the young doctor (a resident) looked like she was going to do it, but her supervisor probably talked out of it because when she came back from talking to her, they had decided not to, because her neuro exam was normal and because they thought I probably already had the acetycholine antibody test with the neurologist in 2015. She said it’s basic and surely someone must have done it.

If you can tell me what this test looks like, I can check in my file if I see it.

I was disappointed she wouldn’t do it. I see my regular doctor (a resident) in the beginning of may and I will make sure she does the test for me.

Meanwhile, I will stay alert and go to the emergency clinic if necessary. By the way we don’t get treated faster if we go by ambulance. It depends on what priority the triage nurse gives you.

Do you think it could be MG even though the neuro exam she did on me was perfectly normal ?

Oh, and yes, I have copies of all my records, including the breathing test. I am waiting for my specialist to interpret it for me. My regular (doctor) said they were normal, although some numbers weren’t, but she said those are not looked at !
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