Hi,
I was visiting my daughter in Zurich when l started getting very painful sharp electric type stabs in the throat when swallowing or coughing. These stabs progressed to incredibly painful debilitating attacks where sometimes l seized and my heart would stop.
The hospital was convinced l was a heart patient and l woke in surgery as they put in a temporary pace maker. I was in hospital for 3 weeks before lyrica worked on stopping the stabs and the attacks. I found a fabulous Neurological surgeon back home in Melbourne who will perform Microvascular Decompression surgery and place a piece of teflon sponge between the artery and the 9th cranial nerve. I am very apprehensive but for me as a person living alone l think it is a sensible way to go.I fully understand your pain. It is absolutely intollerable. I hope you get the right help fast.
Helen Aden Melbourne Victoria Australia.
Quote:
Originally Posted by baa137
Hello.
I am new to this forum but I am hoping to find support in people who understand what I am going through. I am 29 years old. When I was 27, I was diagnosed with Occipital Neuralgia. I went 19 months with out an attack. They have done multiple tests and don't see anything that would be causing the problem. As my neurologist started to dig further into the issue and my symptoms, she discovered that I in fact have glossopharyngeal neuralgia instead. It is excruciatingly painful, and my attacks come on without any warning. No one understands what I am going through and because it isn't something they can "see" I have some that feel that I over-exaggerate my pain. I know I will most likely have to deal with this for the rest of my life, but please someone tells me this gets easier.  |