Thank you for posting this, Glenntaj. As always, very helpful information.
Do you any over the others? My neurologist has always recommended Mayo. Do you have views on that? It's really not a specialty facility, if I'm not mistaken, but his thinking was that they could run all sorts of advanced tests. But presumably so can the places you list here by just sending them off elsewhere, if they can't do it in-house.
Have others had experience at any of these places, especially positive ones?
I'm considering visiting a center this summer, since my condition is getting worse and worse each day.
Quote:
Originally Posted by glenntaj
--you want a specialty facility.
These include:
The Cornell Weill Center for Peripheral Neuropathy (New York)
Massachusetts General Hospital neurology (Boston)
The Jack Miller Center (Chicago)
Washington University Medical Center, Neuromuscular Division (St. Louis)
The University of San Francisco Medical Center (San Francisco)
Johns Hopkins Medical Center (Baltimore)
There are probably others that would provide comprehensive testing and treatment approaches; these are the ones that have been research hotbeds into the condition over the years.
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