Quote:
Originally Posted by floridaman
Thanks for the replies!
Have you been diagnosed with SFN? Punch biopsy maybe?
Have you found anything that helps, other than narcotics?
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OK, my diagnosis of SFN (which is severe, like my skin is on fire, my face, arms, hands and finger tips are affected) was made by my neurologist without any testing.
I have profound Peripheral Neuropathy, which was diagnosed with EMG nerve conduction testing, in 2010 and 2013, and I have several other neuropathic conditions, so I think just based on what I was experiencing was enough for the diagnosis.
I take 3600 mg of gabapentin every day, and most of the SFN is controlled. I still have numbness, tingling, and a sensation sunburn in my lower face, lips and tongue.
I wear braces on my lower legs, and walk with a walker (this is PROFOUND Peripheral Neuropathy) and when I take off my braces and get into bed, the bottom of my feet buzz, tingle and hurt like when you hit your 'crazy bone'. That lasts for about 3 minutes, and then it is gone.
I had to buy new sheets, because I had very high count Egyptian Cotton sheets, but they weren't really smooth, and my face was irritated by the pillow cases. So I bought lower thread count Pima Cotton, Sateen finish) and they feel cool and soothing. I just realized that I should have just gotten new pillow cases! Oh well
Best of luck and finding solutions to your problems with SFN.
Regards, ElaineD