Originally Posted by baa137

Hello.

I am new to this forum but I am hoping to find support in people who understand what I am going through. I am 29 years old. When I was 27, I was diagnosed with Occipital Neuralgia. I went 19 months with out an attack. They have done multiple tests and don't see anything that would be causing the problem. As my neurologist started to dig further into the issue and my symptoms, she discovered that I in fact have glossopharyngeal neuralgia instead. It is excruciatingly painful, and my attacks come on without any warning. No one understands what I am going through and because it isn't something they can "see" I have some that feel that I over-exaggerate my pain. I know I will most likely have to deal with this for the rest of my life, but please someone tells me this gets easier.