I have a question. This is something I have never understood. My breathing is worse, and has been worsening for maybe a week. When I check with my home pulse oximeter, the readings are still within a good range, often very good. But I am struggling to breathe. I gather this is possible, but does anybody have an explanation for it? I am using my home non-invasive ventilator more frequently for now, and it is helping. I am still going to the hospital for plasmapheresis regularly and keeping up with my medications, so I am trying to do what I can. I don't know why I am doing worse. Thanks for any information you can share.

Take care,
Erin