Dear Juanitad,

Thank you so much for this, although I'm so sorry for what happened to you. I've had the same thing happen to me, where the doctors told me I must be suffering from anxiety and I should try taking Ativan in the hospital. It just made it all worse! I'm so sorry you landed in the ICU and had to be intubated. That's really terrible. It seems like there is so much confusion and misunderstanding about how to treat myasthenia gravis. I understand it is a somewhat uncommon disease, but at least where I live, it seems most of the doctors still encounter it. I'm not their only patient. They should have better training in how to deal with it safely.

I did know some of this, that it is my diaphragm and chest wall muscles that are causing my breathing difficulty rather than my lungs. But thank you for your explanation, which really helps. I send lots of good wishes your way, and I hope you are doing as well as possible.

Take care,
Erin