I don’t seem to be getting strong or sustained relief from monthly IVIG treatments. It took 21 days before I got symptom relief from the first round, which seems way too long and only lasted 3 days. The second month, symptom relief started at day 14 and lasted 4 days. This month, it’s day 12 and I am feeling pretty bad. Last night, I had really bad leg/arm weakness, slurred speech and could not swallow my mushy dinner. I have lost hope that IVIG is working for me at all.

Has IVIG failed for others? My MG symptoms are debilitating except for a random few hours here and there where I feel fine, always in the mornings. I cannot walk unaided, have double and blurry vision, generalized weakness, neck weakness, body temperature regulation issues and horrible intestinal cramping from Mestinon. I’m currently on Cellcept (6 months), Mestinon q4h and on a Prednisone taper (currently at 35 MG). If so, what did your Neurologist change? I sent a message to mine and he is halting any further IVIG treatments until he sees me at my next appointment in May.