Hi Barbi-Girl,

I am sorry you are not feeling well, and IVIG is not helping as much as you need right now. When you had your original dose of IVIG, did you just have one dose, or were you in the hospital and had multiple doses over the course of a week or so? It could be possible that they are not giving you enough, or frequently enough.

It is also possible that it is not working for you, and maybe they need to try a different treatment, like plasmapheresis. If you are too weak, and you cannot swallow, this can be dangerous. You did not say if your breathing is also affected, but please consider going to the ER (or A&E, depending on where you live). If you need to contact your Neurologist before you go to the ER, please tell him that you are unable to eat because you are choking too much, even on mushy food. That should get his attention, and make him aware that you are in need of additional help.

Hang in there! Let us know how you are doing.

Take care,
Erin