Erin,

First IVIG was done over 2 days and was termed “loading dose”. It was done in an outpatient infusion center. I had a bad reaction to it and for other reasons, switched Neurologists. The new Neuro wanted to continue monthly infusions but lowered the dose (and switched brand) of IVIG given over 2 days each month. I don’t think it’s working. Those good days I’m having could just be typical MG good days. They don’t last long.

Regarding how I felt last night with not being able to swallow, it was the soft food (mashed potato consistency) which I could not get my throat to move! I could drink water and swallow dryer food. The slurred speech and tiredness were bad and I upped my dose of Mestinon, waited for it to kick in, then fell asleep. I had no breathing issues last night. Today, I’m so very tired, can’t walk or raise my arms. I’m feeling bad but I am not having trouble breathing, although if I push myself to move, I do have shortness of breath.

Barbi-girl