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Old 04-16-2018, 03:47 PM
4-eyes 4-eyes is offline
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Join Date: Aug 2009
Posts: 642
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4-eyes 4-eyes is offline
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Join Date: Aug 2009
Posts: 642
10 yr Member
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I guess the "loading doses" have gotten cut along with so many other things that are medical. When I began, I had 5 consecutive days in a row with a full dose, followed by one day a month. That was not enough, and I went to every 3 weeks, and eventually went to subq IG. It never really worked. I was a lot like you. I also took Cellcept for about 15 years.

The only thing that has worked for me has been Rituxan. That and Solaris really seem to be making some lasting difference in the lives of folks with MG. Personally, I've had 3 doses of Rituxan since January 2017, and am now on no other MG meds and also am 97% symptom free.

Keep looking for options! The more "failures" you have the quicker you may be able to try one of the "big gun" meds. In the meantime, be very careful. I'm sorry you, too, are suffering.
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"Thanks for this!" says:
AnnieB3 (04-16-2018), azwild (09-18-2018)