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Old 04-19-2018, 11:02 AM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default getting tested for the LRP4 antibody

I have had MG since 2009. I have been tested for the AChR and MuSK antibodies several times each (and also LEMS), always negative. I was diagnosed with MG the third time I had a SFEMG (the first two came back borderline).

I have also had no significant response to Imuran, IVIg, or Mestinon.

My neurologist is going to test me tomorrow for the LRP4 antibody. He was surprised when I told him I had read that there's now a commercially available test, but he believed me, and found it.

I have tested negative sooo many times... I will be disappointed if I get another negative test. We are trying to build a case to the insurance company to try Rituxan. But how cool would that be if it's positive!

Abby
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"Thanks for this!" says:
AnnieB3 (04-29-2018)