Hi Barbie girl, the most important thing is not to give up. I got diagnosed 3 years ago and switched Neuro as well because first one overdosed me on mestinon and I ended up in ICU for 2 weeks. Now I have a wonderful doctor and she gets me, never doubt me even though I am seronegative and I was diagnosed based on my symptoms only. I carry a note
From my neuro in my wallet stating that I have MG so if I ever end up in ER I show it to the doctor there. Then it's not just what you tell them my diagnoses are but it's an official note so they don't question another doctor.
Anyways, I wanted to tell you my experience with ivig. First I was taking it for 2 days in a row every 4 weeks. I was ready to give up on it as I didn't see results. Then we switched the brand of ivig and things got better. The more times I had my ivig the better I would feel after. I could tell it started working but I would have 2 to 3 good weeks and then 1 bad week right before next infusion. My Dr suggested we switch to infusion every 3 weeks and it's amazing how now I'm symptoms free 98% of time. Stopped taking prednisone April last year and I take mestinon only in the morning 60 mg. Also I'm on Imuran for last 2 years. All I'm trying to say by sharing my experience is that maybe give it little more time? I guess ivig is type of medication that is suppose to make you better almost immediately but in my case I needed time. Also how much ivig you get suppose to be based on your weight. My doctor gave me little extra.
I hope you will get better soon. I remember that I was saying exactly what you are saying now that I should get used to my new normal because I won't feel good like before ever again. Be your own advocate and don't give up. It will get better. It has to!