New Member
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Join Date: Apr 2018
Posts: 2
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New Member
Join Date: Apr 2018
Posts: 2
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Bulbar MG improvement in breathing not in swallowing
I was diagnosed in February with Bulbar MG and I have had improvement with Mestinon, prednisone, and CellCept. I was started on a low dose of steroids and had them increased to 60mg a day about 2 weeks ago but my gag reflex hasn't returned and I am still choking on liquids at the end of my dose of Mestinon. Has anyone gotten any improvement from plasmapheresis or IVIG? All of my blood work was negative for antibodies. I am 44 years old and have Hashimoto's thyroiditis. The MG showed up after a bout of bronchitis and treatment with Biaxin. I am still working full time and going to school and raising 2 teenagers. Some days are a struggle. Also, the medication makes me so sweaty! I am all ears for tips and advice.
Thanks,
Rachel
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