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Old 04-30-2018, 06:36 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Hi, Bill. Welcome aboard!

What is the reason a doctor brought up a statin? Do you have high cholesterol or just slightly above normal cholesterol? Slight changes in diet and a bit of exercise can help the latter.

I suggest reading anything and everything Mrs. D has posted about the status drugs. There's one that can cause a "wild type neuron" in the body, with the associated bodily damage.

Look up beets or red yeast rice. Both are supposed to help with hypertension (if you have that).

Don't ever assume that MG is causing all of your symptoms. Fatigue can be from anemia, sleep apnea, a low B12, and lots of other causes. Many people over the age of 50 have a B12 deficiency and don't even know it.

Have you had other basic testing done, such as Vitamin D and B12, TSH, CBC, and metabolic panel (to look at kidney and liver function due to the drugs you're on)?

Have you had a cardiac consult? Pulmonology consult? If not, I would highly suggest both. If you can find a good pulmy who is also a sleep specialist, that is very helpful. Even if MGers don't have apnea, a BiPAP or APAP (alternating pressure) can be very helpful to help us breathe better while sleeping. Muscles become weaker while sleeping for everyone. For MGers, that can be more problematic. Some MGers have their O2 go too low while sleeping, which is a great stressor on the heart and brain.

Do you have good omegas in your diet? You know, fish, flax, etc. Even walnuts are good for that. Steroids reduce the gel coating of the stomach, and reduce good prostaglandins in the body. So adding good ones is a good idea. Also taking a good calcium supplement with vitamin D is smart, due to Pred's effect on bones.

My advice? Know your disease, know what could make it worse (and better), look out for any new symptoms, and have great doctors. But even great doctors don't know everything. Be your best patient advocate in any situation—or have someone like Mike has; a great wife who is his best patient advocate!

MG does suck. Even on medications, MG has a tendency to still be there to a degree. So manage activity with rest. The worse MG becomes, the longer it takes to recover. Instead of a roller coaster, keep MG on an even keel!

Anything else you want to know or share? Yes, this is a great bunch of people here, even though it's sometimes quiet.

Annie
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