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Old 05-16-2018, 02:34 PM
csummers@heavenhill csummers@heavenhill is offline
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Join Date: May 2018
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csummers@heavenhill csummers@heavenhill is offline
Newly Joined
 
Join Date: May 2018
Posts: 2
5 yr Member
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Quote:
Originally Posted by panda513 View Post
Hi all; I am new to these boards.

I was diagnosed with Meralgia Paresthetica about a month ago when my outer thigh became completely numb/asleep. It is constant 24/7 numbness.
Recently, I have been getting some stinging pain (manageable) while I sit or walk. The worst however is at night...

At least 2-3 times per week I wake up screaming, and I mean hollering, in stabbing radiating pain in my thigh. If I sleep on my back with both of my legs flat, this happens. Funny enough, if i sleep on my side with my right leg (the one affected) on the bed and the left leg on top, no issues. Very little pain in the morning and manageable.

Why is it that when I sleep on my back I would get this awful pain? I can't move my leg sometimes for a good 10-20 seconds because of it. It does go away but it's awful.

Anyone experience this? I am going to try to see a chiropractor for relief. Both my neurologist and rheumatologist told me there is nothing they can do. My neurologist did give me Gabapentin but it is not helping.

Thanks in advance.
My first time on this site....just registered. What you describe is almost exactly what happened to me. The only difference is that I did not get the numbness first. Just a nuclear attack in the middle of the night. I'd just had right shoulder rotator cuff surgery Jan 30, 2018, and was sleeping in a bed propped up on my back, when in the middle of the night I had the super hot burning poker go off in my left thigh. Went away after 30-40 seconds, but left me a bit shaken. Happened every night after that for a week. When I went to my follow up appt with the surgeon, he gave me an antiinflamatory, Mobic, and said that should help. Two nights later I had what I call the "Hiroshima" of attacks...instead of 30-40 seconds or a minute, it went off for a full hour. I now what a torture victim feels like, as I have never had that much sustained pain at that high of intensity in my life. Can't even describe it completely. To move things along, I tried acupunchture, chiropractor, spine doc, my GP, etc....nothing helped. Got a steroid injection in my spine in the L 5 or L 4 area, did zero to help, but then my buddy googling my symptoms, told me I have MP. 6 doctors and not one of them diagnoised me correctly! After I knew I had MP I went to the spine dr and told him I needed a nerve block in my groin not my back, and he ordered one. At first I didn't think it worked, but about 10 days later I felt gradual improvement, and it has improved to the point that I can sleep in a bed again (I was sleeping in a chair out of fear). I almost went on disability at work, I had to cancel 3 important business trips in a row. I am currently taking 600mg of gabapentin in the morning and 900mg at night. "Sparky" as I refer to the nerve in my left thigh still sparks most days, but it's been at least 6 weeks since he's nuked me at night. During the day when he sparks, the pain is a 2 to a 5 or maybe 6 at worst, but when he's go off at night it was a full blown 10. I also get the numbness, itching, stinging, stabbing, etc......I am just grateful I know what it is. I've lost some weight which I understand can also help, and now that my shoulder is mostly healed from the rotator cuff surgery, I can sleep on my side, which according to your post helps you. I never put it together that all my worst attacks, the sleeping night time attacks, were all on my back, a position I rarely if ever sleep in. It has been one hell of a journey, one that I'd rather quit. But I would try the groin nerve block for the lateral femoral cutacous nerve if I were you....I'm pretty sure it helped and I'm trying to schedule another one.
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