Thread: CNS Vasculitis
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Old 05-29-2018, 05:47 PM
kell.steve@bigpond. kell.steve@bigpond. is offline
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Join Date: Feb 2016
Posts: 20
8 yr Member
kell.steve@bigpond. kell.steve@bigpond. is offline
Junior Member
 
Join Date: Feb 2016
Posts: 20
8 yr Member
Default CNS Vasculitis

I have been told by 4 Neurologists that they feel I have CNS Vasculitis, this is after 3 years of investigations after finding white matter change to my brain. They do not want to do a brain biopsy yet to confirm? I really want to talk to people who may be affected by this disease, I have no idea of what my future is going to hold. If there are any preventions I can put in place. I really want to connect with people who know about this disease.
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