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Old 06-13-2018, 07:13 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by swampcricket View Post
its been awhile since i last posted. so here is an update on on the amputation. On May 24th 2016 i had my hand amputated they did a trans radial amputation. While in surgery they put a prosthetic hand attached to my cast to help with the way the brain thinks. i wore this for about two weeks i was able to operate it with my shoulder the hand would only open and close at this point. Also during surgery they did TMR (targeted muscle regeneration). I spent 6 months in therapy. I stopped all my medications at the end of the two weeks when the cast was removed. i was placed in another cast without a hand on it for two more weeks. I was fitted for a prosthetic at this time. now it has been just two years since the amputation i'm completely off all medications and have no problems with the RSD. i have had phantom pain occasionally in the area where my pinky was but this has only happened a few times. i seen my hand surgeon every three months to make sure everything is going good, now i see him every 6 months. that will drop to once a year in December. I would say that i'm 90% percent back to normal. I use my prosthetic everyday with out problem. I know a lot of people are against amputation but it helped me. this is the best i have felt in the last 5 years since i was diagnosed with RSD. if anyone would like to discuss this any further please let me know.
Wow 2 years since an amputation and you're off your medication and doing fine. That's amazing to hear.

I know someone else who has had an amputation (legs) and is in terrible pain all the time; goes to show it's different for everyone.

Good luck.

Not everyone would just let their hand be amputated due to RSD. It's often a long shot.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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