Newly Joined
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Join Date: Jun 2018
Posts: 1
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Newly Joined
Join Date: Jun 2018
Posts: 1
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Wow thought I was crazy!
Wow guys thought I was crazy! I'm going through the same thing. For months I suspect I've had a Csf leak but no one will listen. I was 218 lbs and full of muscle. I have had 7 MRI's a CT scan and been to 4 different neurologists. I have lost 22 lbs and feel like a shell of myself. I have twin 5 year olds and find it hard to even get up and play w them although I tough it out and do. They have now diagnosed me w New Daily Persistent Headache Syndrome and want to give me Botox. I am again pushing on to be evaluated for a CSF leak. So frustrating. I'm taking Percocet to survive and tell the doctors that I don't want to become addicted and no one seems to care. Feel like I'm losing it! Will keep everyone posted on progress. Don't know what the hesitation is for them to look for CSF leak! Ronnie
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