Good afternoon.

First post. Happy to join your forum.

Just looking for a little advise I suppose.

So, about 7 years ago I got some twitching above the ears. It was first on the right side, then the left. The twitching was rapid, like a machine gun. I found this all amusing. It went away after a few weeks.

It returned a couple of years later, same as before, for a few weeks.

It returned a third time in march 2016. However, this time it was different. The twitching was slower (like a shot-gun) but lasted longer (twitching episodes might last an hour or two). It started in the right, then moved across to the left, then was left or right. It also affected my sleep a bit as I sleep on my side as it's like someone tapping me on the head.

I noticed from there, a greater amount of twitching around my body, all random places, for a few seconds, minutes of hours. The twitches would stop once the muscle was activated (if possible) only for them to start again when the muscle relaxed.

The twitching peaked in May 2016, when I firstly noticed a odd sensation on the front of my shin. I then noticed tingling in my right foot, then my left. I also had a prickling (think prickly heat) feeling around my body, especially thighs and back of hands.

I had no other symptoms. I went to the GP and was eventually referred to a neuro, who gave me clean bill of health after a physical exam (he said he'd never heard of anyone twitching before¦hmmmmm!!!).

I was happy with that, I didn't was a condition anyway.

Over the past 2 year my symptoms have decreased¦all except the tingling in my feet.

My twitching etc is classic BFS¦but chronic tingling in the feet is more classic SFN is it not?

Other than the tingling, I have no other symptoms of SFN. The video below talks about the main presenting symptoms being pain (although some class tingling as a form of pain), hyper sensitively to pain (bed sheets), inability or decreased sweat, a reduction in ability to feel sharp or dull pain, inability to feel heat/cold . I have no burning pains (hot or cold)

(search "#Small #fibre painful #neuropathy Causes and Treatment" on Youtube)

I am also only 35, thus 30 years younger than mostwith SFN (according to research).

I currently live my life as normal, as before I had any of the above.

My tingling is mild. I can go days, weeks and probably even months without thinking about it (or if I notice it, I dismiss it as quickly as that). I only feel it when I'm still. I feel it less when in bed at night, and sometimes have to try to find it in the morning¦. But it is there¦still there¦not getting better, but not getting any worse.

I know the only way to know for sure is a skin biopsy, but being in the UK, with my mild symptoms, I'd be very surprised if I am ever granted one of those tests.

Just wondering what people's thoughts are about my situation.

Thanks all.