Hi all,

I'm Mark and I live in Baltimore near the infamous Dr. Levy. I was originally diagnosed with Superficial Siderosis in the Fall of 2003, when my hearing started getting wonky. Dr. Levy came on board and specialized in SS, and I participated in his first drug trials.

These days, my personal issues are more balance-related as I try to maintain my job performance, and I revisited Dr. Levy to get the latest info on Ferriprox (also Deferiprone or Kelfer). My insurance is having none of it after multiple appeals and finally denial, so I'm considering the option of buying it myself from an Indian source (barely affordable). But I need to know they're legit and have a history first.

Has anyone gone this route? Can you recommend a vendor that you've personally worked with?

I'll have lots more to say and ask, but this is my priority of the day.

Thanks in advance!