Originally Posted by DavidHC

Welcome, Burnsie! Though I'm sorry you have to be on here at all.

I'm not on here often anymore, but I noticed this and wanted to respond. I am also in my mid-30s, and have both full-body SFN and BFS. I determined what the latter is and that I have it on my own. I then explained the link to my neurologist, who actually thanked me for it and asked for the studies I had found. I can't seem to find that list now, but a quick Google search turned up one such study. Here it is:


Sadly, with the vast majority of neurologist you'll be on your own and reaching in the dark. I've had to do almost all my research myself over the years and ask for help on here and elsewhere. But as you can see BFS and SFN are connected, so you're not alone. Some speculate that the decrease in small nerve fibers in SFN cause BFS.

I hope this helps, and good luck!