Quote:
Originally Posted by Burnsie
Wow, quick work...what were your symptoms?
Mine are mild, and i'm young (for PN), so that's why I expect a battle...but i'm thinking after 2 years, I at least need to be able to rule something in or out...it's no good, whatever this is, starting to progress in 2 more years and I could have stopped its progression!
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It took me a year to get this far. I’m 35 so young too. I have full body burning, stinging, twitching, POTs and autonomic problems, GI issues, it’s pretty full on and very debilitating. It came on fast (4 weeks last year) and my feet are now permanently numb. The pain however started in my shoulders after the Gastro stuff . I’ve seen 4 neuros and it took me a long time to get them to believe I was not making it up. Once my cardiologist diagnosed POTs he sent me to a better neurologist that got the sfn ball rolling.