Hi to all, not sure what I am doing as I am not very computer savvy. I suppose I am wanting to tell my story in the hope that someone may be able to make some suggestions for managing Small Fibre Neuropathy. After 7 years going from this one to that trying multiple drugs and having doctors just not believing me about my pain, I was sent to a Prof of Neurology who was quick to diagnose small fibre neuropathy on the basis that (she is a Professor on Neurology and she does not require any tests to prove her diagnosis.) I have been put on 600mg Lyrica a day and although some of the burning has lessened I am not able to freely move around without pain in my feet, legs and back. My feet have constant pins and needles and get cramped up after I sit and stop for a rest so depending on how long I have been on my legs the pain often travels up my legs as well. Hands are pins and needles and lack sensation and numerous other little things that prevent me from having a normal excistance and unlimited movement. I agree my symptoms are typical with this diagnosis but I can't find anybody with a medical knowledge of SFN to explain the condition and the prognosis and management of the pain. The Specialist says go to your GP and the GP says that is why we send you to specialists. Some days I feel really defeated by this SFN and google till I just get totally confused. Would like to talk to someone with an in depth knowledge of SFN that can tell me why in layman terms. So here's hoping I might find a needle or two in the haystack of information.