Hello lonaday and welcome to NeuroTalk. I am sorry that you have had to find a place like this but it is a great place to let it all out and vent when you need to as most of us can likely relate in some way of what you are going through.

You may find that many of us have more than one problem going on so you are not alone there. I for one have CRPS, arthritis and peripheral neuropathy. Having more than one specialist is not uncommon so you may want to see both a pain management doctor as well as a neurologist. Both can do different things to help control or possibly even send your pain into remission. It's also common for some people to see a rheumatologist but who all you see is up to you and your doctor. I only see a pain management doctor and that took me a long time to find one I am comfortable seeing. I now drive over 6 hours every 3 months just to see her.

In a way, it is good that your PT won't touch you. It shows that they have an understanding of CRPS. The number one thing that they should be aware of, as well as anybody, is to not touch you unless you tell them that it is okay. I am sure that you have found by now that if they don't ask and they touch you where you have CRPS it can be rather painful. I would like to mention that it is a good idea to keep things moving as much as possible. It may hurt at first but it will likely improve with time.

I hope that you are able to find the information and support that you are looking for here.