Thread: MG symposium
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Old 07-10-2018, 05:25 PM
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
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15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Thanks, Abby. I wish the MDA would get with the technology age, and livestream their programs. Or, at the very least, have a video afterward that everyone could watch.

I also wish that they would include patients in any discussion. This "experts know everything" paradigm of the past doesn't work any longer. We patients are the experts on MG and how to live with the disease. Sure, experts know the technical and medical aspects. But we get MG like they never will!

Annie
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"Thanks for this!" says:
ErinBear (07-10-2018)