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Old 07-19-2018, 02:41 PM
sinjin sinjin is offline
Junior Member
 
Join Date: Jul 2018
Posts: 8
5 yr Member
sinjin sinjin is offline
Junior Member
 
Join Date: Jul 2018
Posts: 8
5 yr Member
Default Worried and looking for help

I don't know where to begin and will apologize now for this being a long post. Back in late Winter, early Spring 2016, I began to experience what felt like a pins and needle feeling in my left foot. This would come and go. I also had the feeling of wearing a sock that wasn't there on my left leg. The 'sock' was the equivalent of a crew size one. I always wear socks that are just over my ankles. I was tested for diabetes (A1C came back at 5.5). I ended up going to a neurologist. Blood test showed that I was low in Vitamin D. Doc gave me a script for some Vitamin D and the problem went away, including the sock feeling.

Now, fast forward to January 2018. I had at least two or three instances where my left foot would feel like it was going a bit numb. This happened once outside when it was real cold. I have a vague recollection of this happening while in the house. This was resolved by bathing the foot in warm water for a bit.

We are now in July 2018. Almost two weeks ago, the feeling of the crew sock on my left leg returns. I start freaking out a bit. I now have intermittent burning/shooting pain in both feet. The pain level is about 1 on a scale to 10. There was a feeling of pins and needs in my left big toe circa three weeks ago for about five minutes.

I have hair on both feet and I know from the neurologist I saw two years ago that is a good sign. Thankfully, I have not (so far) had any numbness, tingling, problems with walking or balance, or loss of sensation. I can sense hot and cold on the feet just fine. You should have seen me last week when I was running each foot under hot/cold water to test their sensitivity. If I am wearing shoes I can feel it if I step on something such as a rock or a small pine cone. I can sense a change in surfaces (i.e. carpet or wood floor) with or without socks.

In spite of this, I have been freaking out. Last week was REALLY, REALLY bad. I have had a couple of crying fits that included dry heaves. I had an emotional breakdown last week in front of my wife. I started seeing a therapist again. Granted, it was an emergency appointment last Friday for one visit, but it seems to have helped.

This week hasn't been too bad. I have been turning to God for help and doing some meditation. I was supposed to have my yearly physical on Tuesday. My wife went for moral support. We spent most of the time explaining to my primary doctor what I've been experiencing and what I've been doing through. He didn't seem overly concerned and was trying to calm me down. His point was that we need to run tests and go from there. The waiting, as Tom Petty sang, truly is the hardest part.

I've been Googling diabetes, peripheral neuropathy, and posting in forums like this.

My fasting blood glucose last week for my physical was 99, the high end or normal. Today, A1C comes back at 5.4. My basic lipid panel results are all normal. While typing this, the TSH results came back normal. The only results I am waiting for now are the Vitamin B12 and Vitamin D. I have been taking Vitamin D supplements since May of 2016 so I doubt that will reveal anything. I eat Total cereal six days per week and, two years ago, my B12 levels were fine.

I am concerned that all these blood tests will come back normal and I'll still be left with the intermittent burning pain. I am worried about losing mobility, losing my feet, that this burning pain will get worse, that my feet will go numb, etc. I can try to quell the anxiety and fear for a bit, but it is almost ALWAYS with me.

I saw a doc last week that said what I described sounded like neuropathy. He said it's usually caused by diabetes. My A1C came back normal today and you'd think I'd be happy, but I'm not. Why? I go online and read Dr. Richard Bernstein who says that the ideal glucose level is 83. I then start to think that the ADA guidelines are wrong. Perhaps I really do have diabetes and the A1C guidelines are too high.

Doc last week gave me some Xanax to help with sleeping. I haven't used it every night because I know it's a short-term fix. Primary doc discussed with me and I've decided go back on Prozac.

I don't know if I'll get back to feeling 'normal' like I did before this started two or three weeks ago. I imagine the Vitamin B6 and D blood tests will come back normal. I then have to wait until next month to see the primary doc for the actual physical. I imagine a neuro consult will be next which probably means another two or three months of waiting beyond that. How in the hell am I going to survive with this? I have only eaten a sandwich today.

I do walk six days per week, but even the exercise does virtually nothing to take my mind off of this. I can't stop posting and Googling. Two years ago, I was able to get to a point where I was able to patiently wait for the appointment with the neurologist and wait to see what he had to say. Now, I am so full of fear I don't know what to do.

I am just looking for any help, feedback, or insight that people can provide. For what it's worth, my doctor is part of the Cleveland Clinic.
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"Thanks for this!" says:
echoes long ago (07-19-2018), pinkynose (07-23-2018)