My husband was diagnosed with Myasthenia 2 years ago. mainly it is just they eye closing that gives him problems. He has been on Mestinon and it has worked really well. 3 weeks ago he went for his check up. All the test results were better than previously and everyone was happy. Suddenly about 3 days later he has had a relapse. Its as if the pills just overnight stopped working. None seems interested in why the sudden change. H has been given a much stronger Mestinon dose to add at bedtime but so far the results are not good, plus it is too expensive for us to keep up permanently. i asked about tests for vitamin deficiency because he often doesn't want to eat but I was told they couldn't justify the test so we would have to pay for it!
Has anyone had a similar problem? Any ideas at all?
Thanks