Member
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
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Member
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
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Hi there. Sorry never replied to this - must have missed it. I’ve only just found an app which sends me alerts - so hopeless with technology!
My Livedo on feet isn’t mild really - my feet go very dark purplish grey. I see a vascular doctor who says this is the small fibre neuropathy damage causing a vascular response. My thoughts are that I probably have some form of small vessel vasculitis occurring on and off because I have other symptoms and signs such as blood in pee and dark purple petechiae which come and go on my feet and legs intermittently. So I suspect the vascular dr is slightly wrong and the small vessel vasculitis is causing the small fibre neuropathy rather than the other way round. But I haven’t confirmed either with skin biopsy yet so we will see.
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If you get lemons, make lemonade
Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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