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Old 08-13-2018, 08:46 PM
lookingfortoshelp lookingfortoshelp is offline
Junior Member
 
Join Date: Aug 2018
Posts: 11
5 yr Member
lookingfortoshelp lookingfortoshelp is offline
Junior Member
 
Join Date: Aug 2018
Posts: 11
5 yr Member
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Quote:
Originally Posted by Jo*mar View Post
If you can describe her most bothersome symptoms & locations of them, we might be able to also give suggestions for self care, PT /Chiro or specifics to ask drs about..

Do you know what might have caused her TOS ?
Or possible causes..like -
previous whiplash
extra C ribs
forward head/shoulders posture
Repetitive strain- chronic /multiple injuries
accident or sports injury
Reply

My daughter competed in natural physique competitions. After succeeding at the regional and provincial level, she was set to compete at the national level. Due to pain and fatigue in her arms she was unable to compete. We are unsure if the TOS came from lifting weights (repetitive weightlifting/sports injury) or a possible impact injury in a lake. She noticed the pain and fatigue gradually increasing over a few months.

The first sports medicine Dr. in our hometown she was referred said TOS tests of Adson's were negative. Xray's indicated no accessory rib.

Based on ultrasound results my daughter was diagnosed with Bilaterial Pectoralis Major Tendinopathy, Supraspinatus Tendinopathy. She went to Chrio, physio, accupuncture, massage and a natropath for the past year with that diagnosis.

After seeing no improvement and in fact more fatigue and pain when lifting her arms to even brush her teeth or hair, she went to a sport medicine specialist in Toronto. He suspected TOS and recommended a vascular ultrasound which came back indicating moderate to severe TOS.
The surgeon she was referred to and saw last month, no longer performs surgery and even if he did, he indicated he would not recommend surgery until she was pretty much disabled. He indicated the TOS was Neurogenic. She is scheduled for a 2nd vascular ultrasound and waiting to see a 2nd surgeon in Toronto.

She has been unable to work her upper body at all for the last six months and only lift light weights for at least six months before that. It hurts as noted to even do the smallest tasks when raising her arms. She recently graduated from Culinary Nutrition school, works part-time in a health food restaurant (which requires use of hands and arms extensively) and works part-time at a gym (which requires arm movement). She is continuing to go to school online taking a Strength & Conditioning certificate with plans to be a trainer who also provides guidance on nutritional meal planning. It is difficult to work 5 days a week and take notes for school and the pain has started to cause loss time at work and play a toll on her physically and mentally.

She is not unhappy with her Chrio, acupuncturist, massage or physiotherapist, but would like to belong to one clinic that hopefully provides specialists in TOS, i.e. sports medicine doctor, physiotherapist, chrio, osteopath, etc. The physio she took for 6 months was not targeted for TOS, but for her original diagnosis, so hoping to find a physiotherapist with experience with TOS. Currently she is going to various clinics and no one person is following her progress.

We are not sure if the 2nd surgeon will recommend surgery or phyiso, etc. but wanting to have names of anyone that comes recommended as being successful in assisting others with their TOS, and wondering if they have had success with any surgeons. When searching online, a number of clinics in Toronto speak about TOS but they don't identify anyone specifically who specializes in TOS in their BIOs. We don't want to waste more time if possible, going to various specialist by trial and error, if we can find ones highly recommended. She wants desperately to reduce the pain she is in and hoping some members have had success in doing so in the Toronto area.

My daughters preference is a clinic with the various specialists in the Downtown Toronto, but would like to know if anyone has had success with any of these types of specialists or any surgeons in Toronto, Ontario, Canada to gather a list of possibilities.

We are interested to know as well if anyone has had success with any of the garments created to address their posture and create more space in their thoracic outlet area, i.e. intelliskin shirts, as her chiropractor recommended wearing one as taping provides some temporary relief.

Thank you to anyone who is able to share successes/names, etc.
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