Newly Joined
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Join Date: Aug 2018
Posts: 2
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Newly Joined
Join Date: Aug 2018
Posts: 2
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Thanks for the reply, AnnieB3!
Unfortunately, I've experienced excessively high bromine levels on several occasions- manifesting in a negative anion gap- with this medication. I suppose that I had what is called bromism. I'm not sure why I seem to have an issue with excreting the bromide. I think it could be due to its long half-life. But I don't seem to see this problem with other myasthenics, although there aren't that many of us.
I have looked into herbs. Huperzine seems a little promising, but I have concerns with its NMDA receptor inhibition. I don't know what the consequences of that would be with this disease, and at this point, it feels dangerous to take the risk. I absolutely agree that these supplements need more studying.
I'm not sure what to do at this point, but I will keep searching!
Thank you, AnnieB3
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