Hi Annie,
Thanks for your reply. We are still trying to figure out what is going on. The extra Mestinon was giving him an upset stomach and also causing his throat to close up so that he chokes. We have cut it back to half the dose, so he now takes 60mg 3 times a day and 90mg at bedtime. He has improved but I don't really think it is the extra dose doing the trick, it seems more like a gradual settling down and Mestinon usually works very fast.
It's hard to get to see the Neurologist himself, he is the only MG specialist in our area, but we do have an appointment scheduled in a few weeks and I will insist on an electrolyte check. It was his new primary care doc who will not send him for tests but he is quite happy to tinker with his existing medications. 6 weeks before he had taken him off the Potassium that he had been prescribed. I did have my husband take some again for a couple of days to see if there was a difference but without any noticeable change. However I have no idea how long it would take to get your levels back up, maybe 2 days wasn't enough.
Do you know anything about magnesium? There seems to be some controversy about it's use. Strangely coffee seems to have a positive effect if only for a short while.
He has been a bit stressed lately, perhaps more than he lets on so maybe that is all it is. It's just good to talk about it. Thank you.