Sorry for the late reply, but I've been doing some research. From what I could gather, prices in the UK are horrendous. They're terribly high and I can't understand why. It also took me a while to understand the somewhat confusing methodology when it comes to labeling. In North America you know precisely how many mg each product contains. In the UK they talk about whole plants and percentages. They do this elsewhere too, so it's not limited to the UK.
Now, despite their insane prices, at least some people seem to like CBD Brothers. And they have what seems to be third party testing on their site, but you'll want to look into that and make sure it's legit. This is if you wish to order from them. Another UK based place is CannaWell, which carries products from Bluebird Botanicals in the states. Bluebird is high quality and the most transparent company out there. The prices are high but not as high as CBD Brothers.
I think the best bet would be to order from the states. I know some American companies ship to the UK with discreet labeling for customs. They have third party testing, high quality and far lower prices. If you're interested in this, send me a PM.
CBD could be immensely helpful to you, but of course you won't know unless you try it. I do hope you do at some point. As for the rest, hang in there. We all know the hell that this disease can cause. I also have changes in my skin all over my body, from head to toe. It saddens me to see it on my head and face. But I trek on!
Be well!
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Originally Posted by MAT52
Thanks David. Someone on a FB forum I use for SFN says she gets hers from CBD Brothers in Suffolk, England and has been very pleased with the pain relief it’s brought.
I wonder if you’d be okay to take a look for me at her recommendation (they have a good website) and let me know if you think it sounds like a good bet in terms of content / ratio of Hemp etc?
At my GP’s request I’m giving Pregabalin/ Lyrica a chance for a month at 150mg per day. It iappears working well for the pain now but is making me feel out of it. I spoke to my neuro PT and her feeling is that this knock out cotton wool fatigue and foggy numbness is probably too a high a price to be sustainable long term for me. I’m uneasy about taking a med which might be hard to get off again after a terrible experience with getting off Cymbalta.
However, bearing in mind I’m under Rheumatology and seeing another neuro for a second opinion end of this month, I have to go carefully with self medicating. My PT works with MS sufferers mostly so is well aware of CBD oil and medical cannabis and is open minded. If I feel these consultants are still selling me down the Swanny without a motorised paddle (I can’t envisage my arms being strong enough to paddle far!) then there will come a time when I decide enough is enough too.
But I do have Sjögren’s and probable small vessel Vasculitis and am also aware that I’ve already sustained a lot of irreparable damage to small nerve fibres from the colour changes in my feet and hands and the fact that, when any pain is addressed through medication, I’m left increasingly with numbness everywhere.
Nevertheless I plan to ask the rheum and neuro what their thoughts are on this - given the horrific side effects that many Pharma products have inspired in me!  |