I know all about the lovely associated factors of kidney issues. My Dad had kidney failure/transplant (due to rheumatic fever/high BP). Potassium balance is tricky.

If he hasn't had an ECG and echocardiogram, that would be a good idea.

Discuss the potassium issue with the nephrologist. But having small amounts of potassium in foods throughout the day might help with the leg cramps. Keeping the calves warm will help as well, especially while sleeping. Staying hydrated does too, but the balance is so delicate with kidney problems.

That was a really awful thing for that doctor to say, obviously out of ignorance. No one can tell what the course of someone's life will be. Unless a person has a terminal illness. But MG is not a death sentence.

A BiPap or APAP (newest machine) would probably help him while sleeping. A pulmonologist/sleep specialist could get him one. An oximeter can also help to monitor trends in breathing over time. But go by symptoms most of all with MG.

I'm glad he is better. He just can't overdo physical activities, or become too hot. If he goes anywhere near a clinic or hospital, make sure he wears a mask. Sounds silly, but I got pneumonia just being in a hospital and not touching anything.

I hope things continue to go well. I would still push for those other basic tests.

Annie