Originally Posted by AnnieB3

Hello, Yllillilo, I'm sorry your father is having difficulties after the MG diagnosis. That can happen. It can take a while for someone to become stable. Once they are, and a treatment plan is in place, things should get better!



The feeding tubes are okay. Gross to look at but good for someone who can't eat. My Dad had one and did fine on it.



Intubation is useful as well. That gives the breathing muscles time to rest and become stronger.



Since MG patients often have other issues, a doctor might want to test for some basic things like B12 and D vitamin levels, a thyroid level, and a comprehensive metabolic panel.



Steroids can make someone with MG weaker before becoming stronger. Be careful that they don't try to wean him off of that too soon (if they intend to do that).



What else can we help with? Just hang in there. It sounds like the doctors are doing everything they can to help him!





Annie