Oh Layla hasn't started to meet the new roommates, they went home to their parents for the long weekend. So we are just rescheduling it. She should meet them for the first time today. She was invited to go to the company celebration that the company has tonight. So the person that is her person is taking her.
She will have lots of fun. We are working on next week right now.
Well, now I get to start doing a medicine change for Derrick. I'm not
sure I'm going to like this. Its always scary when we change a med
when it looks like no seizures. But he is definitely having seizures in
his sleep. We just didn't know it.
We found out something interesting today, he and I. His vns will go off
on its own when he has a seizure to stop it. I never knew this. In all
the years he has had it no one has ever tried to explain it to us this way.
But one night he had two seizures or vns alerts, which is different than
just his vns going off. It was like a swipe, with at 2:30 and 5:30 am the
same night, his reading today happened. And we know he didn't swipe
his magnet.
Then we are looking into a different way to keep the magnet close to him, during the day. He was to wear it, but he never told us the main cook. Said no, he was afraid it would swipe by accident when he was prepping his food.
So he had him wearing it on his belt loop. Well the month of August somedays it went off 3 or more times in 15 or 20 minutes. During the day, when he was at work. Theres no way it would have done this like 30 or more times. Which is what I believe the girl said it had done. So we know it was
at least part of the time a problem. We believe or this is the thought that
he was walking by sterling silver and the magnet swipped. No real clue
so its back to drawing board.
So now its they are going to try a little thing around his waist, that is really
small that he can keep his magnet, and I'm suggesting tylenol. And when he gets his device for safety I'm going to maybe suggest it too. Then hopefully
this will work.
So he went from Dilintin to Lamictal, and when he was on before memory
problems happened so we are hoping not this time. But work is being told
just in case.
Donna
P.S. I did my pt evaluation today, start therapy next week.