No, if doctors test for RA, they do not necessarily test for lupus. Do you have all of your past test results? There are tons more tests for lupus. Do you ever have a rash after being in the sun, or feel tired/weak after doing so?

Too bad you can't go to MN. The best rheumatologist is there (Jody Hargrove). She wouldn't pooh-pooh you.

A sed rate of 130 is very high. In fact, the chance of something not being seriously wrong at that level is zero. Whether that is inflammation, infection, or cancer. My money is on an inflammatory disorder (not that I have any!).

Ask around and find out what rheumatologist is good in your area. When you find one, keep things simple. Don't be combative (no offense). Just ask them to help you. Don't say what you think might be wrong. Tell them only your basic symptoms.

I wish I could help more. I hate when people don't get the medical care they deserve!


Annie