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Old 09-10-2018, 10:11 PM
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Glad you have someone that listened to you and seems to take interest in your case. Sad she won't repeat biopsies to confirm neuropathy...and give you the 'evidence based theory' you've been looking for. It is NOT like the results would waver based upon 'active' state of Sjogren's, as nerve damage would be seen whether active or not. But at least she is considering treatment or some sort, but didn't sound like she gave you any hint of what it would be. And bottom line...she believes your complaints and is taking you seriously, which I think is something you've worried about for some time. I don't like how she attaches the 'fatigue' label to everything...as clearly your symptoms are not just from the fatigue. But let's see how things go...it's definitely a good start with this doctor.

So just go with the flow, see how she wants to treat you and give it a try.
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"Thanks for this!" says:
MAT52 (09-12-2018)