Hello,

I have TOS in my left upper extremity due to an extra cervical rib causing vascular and neurogenic issues. My doctor originally believed it was just neurogenic TOS as the vascular component occurs with < 1% of cases. When I visited the Dr. that performed the EMG she is the one that believed there was a vascular component due to a positive addisons test. After this my Dr. ordered a CT w contrast which showed a severely compressed sub clavain artery with post-stenotic dilation - this increases the risk for a clot to form. I then got referred to a neurosurgeon, orthopedic surgeon and vascular surgeon in my city. All 3 agreed it required surgery but would not touch it and from there I got referred to Dr.Graham Roche-Negel in Toronto - He is the #1 vascular surgeon in TO and actually runs a TOS clinic. I will be undergoing surgery with him in a month or two. Good luck to your daughter!