Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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If you have a CT, you might want to consider refusing the contrast (usually iodine). If you have such extreme reactions, that would not be good. Iodine can make MG patients worse.
Not all scars for E-D are atrophic! Don't make assumptions. Some people have the thick type you describe (aka adhesions).
Rach, who hasn't been on her for quite a while, has E-D. I wish you could talk to her about this. She's an expert, I'm not.
You have to have hope, okay? The point is to figure this out, and then treat whatever is going on.
Annie
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