No, I don't really have a primary doctor. Second to last visit, he just really blew me off, which was a shock because he's never been like that before, not as a doctor and also since we've been with him for 18 years and our daughters went to preschool and kindergarten together, and are in the same high school. Last visit I only went in because they were supposed to follow up on a call from the physiatrist they had sent me to, but rather than tell me anything over the phone I had to go in, and he just said that I was beyond his expertise, beyond anything he could do, and that's why he just keeps sending me to specialists. He made it very clear that he could not, would not, do anything other than send me back out.

I asked him if, on the referrals, instead of saying something like "is it RA?" because then I just get a yes or no answer (and it's "no" because I don't have a positive blood test for anything) he could just say, "figure out what's wrong with her" and he told me "It doesn't work that way."

I have asked the specialists, when I am there, "well, if it isn't MG/RA/Thyroid/whateverthelatest, then what IS it?" and gotten in reply, "I asked to decide if it is X or not, and I say it isn't", end of discussion, end of visit, end of story. Really dysfunctional, restrictive system they are working under, since this last corporation bought the hospital and almost all of the doctors in the area.

So, no, I don't have a primary doctor, not for anything more than a cough or a sore throat. I see my next specialist, rheumatologist again, on December 24, at 2:00pm. If I tried for an appointment with the endocrinologist, it would be a 7-9 month wait, as they are, and have been for several years now, very short-staffed on doctors, because nobody new wants to come work in this area under that corporation. My neurologist isn't very good at all, she is not up to date on MG or much else, and has no interest in getting up to date, but she's the only one who would take a chance on giving me the pyridostigmine, and since it works she's still writing the prescriptions, but told me she won't go over the 5 pills a day, and nothing else. Will NOT discuss any other potential neurological issues, like the eyes or headaches or anything. Not interested.

A year from now I should have moved halfway down the east coast to a new area, and just have to hang on until then, as we are counting on there being better doctors in the new area. Can't be any worse.