We have just gotten the diagnosis for SFN *AND* a prescription for gammagard IVIG, and just when we were happy that finally it was figured out and there is hope for successful treatment - we started hitting obstacles with insurance and the pre-approval. We're in midst of appeals, but as I'm looking online for guidance, I'm finding how it has been difficult for people to get this covered.

Do people have suggestions for how to get this approved through insurance, or other routes through the system?

I am finding some clues but they lead to more questions.. ie:

-- Is it better/ does it make a difference if you are getting in-home treatment or go to an infusion center? Somewhere I saw it looked like the centers might be easier to get covered, but not sure.

It is not one of the Primary Immunodeficiency Diseases which (I am just learning) makes a difference. This is for a loved one, we are all just learning about how this all works.

Thank you for any help/ experience here.