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Originally Posted by cure
Thank you so much for helping.
We are in Pennsylvania. A neurologist made the perscription and insurance denied it. There was 1 first level appeal so far the doctor provided medical reports and other information, and that was denied. We are starting the next level appeal, I am learning more about this process and how it works. Meanwhile Right now we are in the hospital for an emergency related to his sfn and it is not the same system as the specialist who perscribed it.. the dr here isn't delivering it and I wasn't here to understand of it was bc of insurance or bc he didn't agree w the other dr. We are trying to coordinate them better and hopefully get the first dose here.. he needs it now.
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I was unable to message you so I will try to help you here. There is a specialty infusion pharmacy in Aston PA who may be able to help you with your rx getting it through the insurance company maze. The company is Infucarerx.com Call and ask for the patient coordinator for new referrals. This company is a specialty pharmacy; but they also arrange infusion nursing care. If you can ask for, then ask for a contract nurse and not one they get from a home health agency. The contract nurses are usually specialty infusion nurses and understand IVIG. Let me know if I can help any more. I don't want to look like I am trying to "sell" a company. This is just the one I am using.