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Originally Posted by BioBased
You need to be very careful about the doctors you see. I was seen early on by a doctor who was at first pleasant and then suddenly became utterly horrible to me.
I had a classic presentation of CRPS, yet he could not diagnose me. I now know why. He is doctor who is a go to guy for the Worker’s Comp insurance companies. At the time I was seeing him he was involved in a CRPS lawsuit. Think about that. I had a classic presentation and he was in a CRPS dispute with another doctor, but he could not diagnose me.
My advice is join a CRPS FB group, ask for names. Send emails to known CRPS doctors asking for a list of local doctors who know about CRPS. Do not leave this up to chance, like I did. In the end I got lucky. Now I know better than to roll the dice.
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Joining a support group is well worth the money, and I'm talking a real live support group (like RSDS.org).
I saw doctors off and on for over 3 years; all orthopedic surgeons, because I thought it all had to do with the initial injury - which it did, just not in the classical way I had thought.
Then out of sheer frustration, I went to my GP, whom I hadn't seen since the accident, because stupid me thought I was better off with the specialist care. How wrong could I have been?
He *immediately* upon seeing me drag my feet, sent me to a neurologist in the local hospital, and she diagnosed me on the spot just from the signs, symptoms and entire presentation of the disease in me.
Sometimes help can come from avenues you wouldn't have expected. Now my primary care is my GP and he will send me on - if necessary. I am sure of that.
I was DONE with all the orthopedists who refused to see or acknowledge that I was deteriorating before their eyes.
I wish you the best of luck in your search!
Your GP (!!!), Neurologists, Rheumatologists, and Pain Specialists. You need those 4.