Quote:
Originally Posted by Kenna
I was recently diagnosed with MG. My husband and I had already planned and purchased a trip to Washington DC in October. I am currently taking Mestinon and it is working fairly well, however I still wear out quickly. I will start IVIG next week.
I have read several threads discussing traveling with MG and the reports of worsening symptoms. I am concerned that I may not be able to walk as much as I would like so I am considering renting a small scooter to get around in the museums.
Any input on travel or getting around on vacation is appreciated.
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I was diagnosed almost two years ago and we travel a good deal out of the country. Mostly cruising which makes me feel safer as there is medical treatment onboard. I found I did better when we traveled but had a great deal of anxiety before we left. I was able to get my doctors email addresses, just in case medication and directions as to how to take them (steroids) if needed.
Washington has good care if you have a problem.
Sit when you feel tired. Used a wheelchair at airport if you are fatigued and don’t get too warm.
We are leaving for five weeks in Nov and I am already feeling somewhat anxious. Just be prepared and take the time to rest when you need. You can also take accessible tours in many places if you find you do not have the energy to keep up. Whatever you do try not to push too hard and try not to compare yourself to regular people.
Best,
Karen