Annie,
Thank you so much for your insights! I'm sorry you know so much about it, meaning you have struggled with it for years, but happy you can share your knowledge with others.

The PT and OT is also for the thymectomy/sternotomy. My therapists are very cautious about me "overdoing" and stop whenever they see me starting to weaken. I think it's when I do it on my own that it gets bad, even though I try my hardest to not overdue!

I go back to my neurologist Thursday, and I'm going to ask him about the dosage of Pyridastigmine. Everything happened so fast, I have only seen the neurologist the one time at his office, and that was at the initial onset. Of course in the hospital I saw him or someone from his team everyday. I think their thought was to give me 4 weeks post surgery before tweaking my meds. I hope to find out a lot more when I go!


Again, thank you so much!

Kristi