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Old 11-19-2018, 03:13 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, Desha83. Did you have the MuSK antibodies? Or the newest, LRP4? Antibody levels can fluctuate over time, and a good neuro will retest patients in 3 - 6 months.

The anti-striational antibodies can be from a number of things. Yes, MG is at the top of that list.

Striational antibodies in a paraneoplastic context. - PubMed - NCBI
Striated Muscle Antibodies, IgG with Reflex to Titer
Striational Antibodies in Myasthenia Gravis: Reactivity and Possible Clinical Significance | Cardiothoracic Surgery | JAMA Neurology | JAMA Network

Do you think your muscles are weak? Do you have ptosis (droopy eyelids)? Have you taken photos of your face to see for sure if they are dropping? Are you short of breath? Do you have trouble going up stairs? Do you have trouble using your arms?

When muscles become weak, they can cramp or spasm. In MG, they just do that sooner than "normal" people. Runners and other athletes do experience those symptoms after engaging in their sports. Our symptoms just occur sooner.

I have no way of knowing if you have MG. Be patient! I'm sure the doctors will figure this out one way or another.

If someone hasn't run a basic metabolic panel, they should. Anyone with muscle cramps should have their electrolytes and fluid balance looked at.

You could also have more than one thing going on at a time. Have you had your vitamin B12 and D checked? What about your thyroid?

Don't worry. Whatever is going on, the doctors sound like they are doing what they should to figure this out. Well, except for the other MG blood tests.

Do you have any other questions?

Just don't do too much, in case you do have MG. If you become worse, there's always the hospital! Take it easy.

Annie
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