Quote:
Originally Posted by AnnieB3
Doctors always do this knee jerk reaction thing, where their actions are all or nothing. Oy.
There's a happy medium with Mestinon, as I explained. If you become worse while off of Mestinon, call the neuro back right away. You don't need to go into a crisis of either kind (too much or not enough acetylcholine!).
Annie
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Taking me off the pyridastigmine didn’t work, (I thought of you Annie, when he told me he was doing that😄

, double vision came back, slurred speech, weakened facial muscles, etc. Anyway, he put me back on very low dose; 30mg, every 6 hours. I told him about taking less more often, but he didn’t do that for reason.